Welcome to “Because I Kare”
Welcome to my Substack—Because I Kare—This space
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Blogs
A Caregiver's Voice: Unfiltered
Finally, I have started writing about this journey I have been on since 2014 when Cheyne had his accident. You can find stories, thoughts, information…whatever strikes me in the moment to post about here. It will be unfiltered and real. I don’t have all the answers—but what I do have to offer is what my experience has been like navigating this new (to me) world of TBI, social services, legal issues, biomedical and non-traditional healing therapies and treatments, disability, and mostly what it is like to be a full-time caregiver to a high-needs, and at times, medically fragile family member as the sole provider.
I bring an empathic and sociological perspective to my writings. The blog will also feature voices other than mine—I have had many “angels” along this journey of care who can speak to their experience working with someone like Cheyne from their own perspective. My hope is that you will not only find community here with us, you may also find hope and inspiration.
What You'll Find Here
Personal reflections on Cheyne's recovery and their family's ongoing journey
Honest writing on the experience of long-term caregiving, the hard parts and the hopeful ones
Research and information on TBI, therapies, caregiving practice, and brain health
Advocacy updates and perspectives on how the healthcare system serves (and fails) TBI families
Community features and partner spotlights
Updates from Cheyne's Brain Foundation programs and events