Support Group
The Room Where You Don't
Have to Explain Yourself
There is something profoundly exhausting about trying to explain TBI caregiving to people who haven’t lived it. The isolation isn’t just physical, it’s the quiet experience of being in rooms full of people who cannot fully understand what you are carrying.
Our monthly support group is a different kind of room. Everyone in it understands. Some are six weeks into this journey. Some are six years in. All of them know what it means to walk out of a hospital not knowing what tomorrow looks like and to keep walking anyway.
“While each brain injury is unique, there are commonalities and challenges that we learn about by sharing and reaching out to each other to find solutions.”
— Karen Macbeth, Founder
About the Group
Our monthly virtual meetings are facilitated by Karen Macbeth, founder of Cheyne’s Brain Foundation and a TBI caregiver of over twelve years. Karen brings both the knowledge of a researcher and the lived experience of a mother who has walked this road and neither she nor the group will ask you to be anything other than exactly where you are.
The group is open to:
- Family members and primary caregivers of TBI survivors — at any stage of recovery
- Anyone navigating the long-term emotional, relational, or practical weight of brain injury in their family
What Happens in the Group
There is no agenda in the clinical sense. There is a community. Meetings typically include:
- Open sharing- people bring what they are actually dealing with that week
- Active listening -no advice unless asked, no judgment, no comparison
- Practical resource exchange -tips from people who have been there
- Occasional guest speakers -medical professionals, therapists, advocates
- Consistent, reliable human contact -which is more valuable than most people admit